The Facial Pain Registry

The Facial Pain Registry collects disease-specific natural history data about individuals with facial pain with the goal of improving the understanding of facial pain and informing treatment development. Registry questionnaires were built from common data element standards and cover the following topics:

• Socio-demographics
• Medical history and diagnostics
• Treatment and disease progression
• Management of care
• Quality of life
• Clinical trial participation
• Symptoms
• Diagnosis
• Comorbidities

We are interested in sharing our data with you! If you would like access to the Facial Pain Registry data for a research project, please contact our registry administrator at registry@facepain.org for more information. Access to the Facial Pain Registry data is contingent upon project approval by the Facial Pain Registry Advisory Board.